capri0mni: A black Skull & Crossbones with the Online Disability Pride Flag as a background (Default)
[personal profile] capri0mni
1) Remember that vid I posted, of the guy who did a cover of "I don't want to live on the moon," from Sesame Street? He also composes his own work; he posted this, a couple of nights ago:



C) I made yet another post to Treasures of the Heart: Peace on Earth....

There's now one post up for each of the main, interrelated, topics I intended to focus on: a) the storytelling process, b) actual tales (especially versions people may not know already), and c) etymology, and deconstructing dictionary definitions. All I have to do is Lather, Rinse, Repeat. Hope I don't burn myself out in the first month, and then run out of things to say the rest of the year.

But that's why I started this thing (partly): to remind myself of all the different stories I do know, and to tell them before I forget, or lose the oportunity. And I shouldn't be surprised that December would be a story-heavy month -- the whole culture (at least in the northern hemisphere) is geared up to storytelling at this time of year.

II) Had a dream, last Saturday, and there was one scene that I am keeping hold of, for the next time I get hit with: "But do you ever walk in your dreams?"

No. This is what I dream about:

I had an appointment to get to. It was some sort of officially mandated thing -- psych. eval., or something. Only the medical center, wherever, looked like a posh restaurant/nightclub, and I had to drive my wheelchair up a long, circling, ramp that went aound the lobby (where patrons are enjoying cocktails), up to the office my meeting was in, on a second floor level.

Everything looks fine and dandy, until I'm half way up the ramp. Then it stops, in a sheer drop, about half-way up. There's a gap of about five or six feet, and then, a flight of steps leading to the second half. And while I'm stuck there, thinking: "WTF?" the medical center's receptionist comes down to berate me, telling me to hurry up, or I'll be penalized for being late to the meeting. I try to explain that I'm doing my best, but I can't get across. And she snaps back: "Well, what more do you want? We provided you with a ramp!"

Gotta hand it my amygdala: it sure knows how to bring the figurative snark to the party.

b) Saw a nifty documentary on PBS the other night, on the latest generation of scientists and artists working in oragami. And the idea occurred to me that someone could probably make a full-sized artificial Christmas/Yule tree using nothing but the pages of all the catalogs that come in the mail between October and December. At wouldn't that be the perfect Meta-cultural statement, FTW?

Date: 2009-12-11 05:56 pm (UTC)
From: [personal profile] panrubius
There really does seem to be this opinion among some able-bodied types that providing a wheelchair ramp solves any and all problems we wheelchair users might have. Because obviously, you were supposed to get up some speed and jump over the gap, fly across the stairs and into the meeting, stopping in a long skid that leaves you behind the table ready to do the meeting!

I know that's what I usually do in my wheelchair.

That passive thoughtlessness really does get on my nerves sometimes.

Nice to meets you by the way :-)

Date: 2009-12-11 06:42 pm (UTC)
From: [personal profile] panrubius
Oh my god, we will have a couple of stout young men available to carry you. Oh my god oh my god oh my God. That drives me absolutely insane. I think I would like to use the front door like everybody else please and not have everybody in the lobby area staring at me, as I get borne through the front doors by a couple of sweating teenagers, who are utterly terrified of dropping me!

he could carry me safely without breaking his back (while slightly drunk)
This is something that you really have to watch out for, because those same two stout young gentleman who helped you through the door at the start of the event were sober, it's not the end of the event and getting outside takes on a whole new, albeit exciting, tone.

I am in awe that you actually managed to get across the gap, seriously, how did you manage it?

Date: 2009-12-11 07:18 pm (UTC)
From: [personal profile] panrubius
Oh I see, I think I'm starting to romp towards an understanding here. We've only just met and you're going to think I'm a complete idiot, I thought that this situation arose in real life and not just in a dream. That's what happens when I don't read things properly.

I was beginning to think you were some sort of supreme being with colossal forearms that could lift yourself over great gaps in wheelchair ramps.

*hangs head in shame*

Date: 2009-12-11 09:23 pm (UTC)
From: [personal profile] panrubius
I just read that post you linked me to and I was nodding all the way through it. I have a spinal cord injury (Spina bifida) which puts me in a chair, and those questions come thick and fast when you're out amongst the able-bodied.

I have a slightly different take on things as I was able to walk until the age of about 25 when my spine degenerated to a point where I couldn't walk any more. I had all of these preconceptions About disabled people who were in wheelchairs which I didn't really think about (because I had no need to) until I was put in a wheelchair, I suddenly found out that pretty much everything I thought about wheelchair users, and what it was like to be in a wheelchair, was wrong!

I'll be here all night if I detail everything I agreed with in your post so I'll just make do with saying, I agree with you are pretty much everything had to say about being disabled and the way we are treated and viewed by the world.

Date: 2009-12-13 07:00 pm (UTC)
From: [personal profile] panrubius
No, because I didn't know my spine would degenerate and didn't have much input from doctors and physiotherapists, with regards to my spina bifida that is. I agree with you that some of the worst views about the disabled I've come across have been from doctors, especially those silly silly surgeons (having said that, I think I prefer the driven, workaholic, self-centred, God-complex-rocking surgeons to the ones with a good bedside manner).

I think it was living in the able-bodied world, immersion in mass media and existing in the world generally, that formed my preconceptions. I was that passive thoughtless person that we see every day walking past in the street!

*gets down off soapbox*

Date: 2009-12-12 11:48 pm (UTC)
jesse_the_k: Pipe from Magritte's Treachery of Images captioned "this is not an icon" (on the disabling wagon)
From: [personal profile] jesse_the_k
1. That guitarist was awesome! Thanks.

2. Inaccessibility dreams. Oh how they suck. Because they're not even nightmares, really, just banal recycling of the banal crap we have to banally deal with everyday without throttling total strangers and inserting plastic explosive in the doorways.

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